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Lucassen Group_EPPiGen Grant_Health Professionals Report
A report of the findings from Healthcare Professionals as part of the Lucassen Group Wellcome EPPiGEN funding.
EPPiGEN Findings from Health Professionals_final.pdf (354 KB)
Details of Past Genethics Meetings
Genethics Forum meetings and Venues; titles of plenaries and speakers
Current and Future Legal Issues in Prenatal and Preimplantation Selection - Emily Jackson
June 2025, GOSH, London. Plenary Speaker: Professor Emily Jackson, Current and Future Legal Issues in Prenatal and Preimplantation Selection.
Current and Furture Legal Issues in Prenatal and Preimplantation Selection_June 2025.pdf (1 MB)
Development of an Online Ethics Resource to Foster Situated Ethical Decision-making - Helena Carley
February 2024, Wellcome Collection, London. Plenary Speaker: Dr Helena Carley, Development of an online ethics resource to foster situated ethical decision-making: results of a Genethics Forum co-design project.
After ABC vs St George's Healthcare - Michael Fay
November 2022, Virtual Meeting. Plenary Speaker: Dr Michael Fay. "An ambiguous solution? ABC v St George's Healthcare and the duty to balance the competing interests of patients and their relatives
An ambiguous solution? ABC v St George's Healthcare and the duty to balance the competing interests of patients and their relatives - Michael Fay
November 2022, Virtual Meeting. Plenary Speaker: Dr Michael Fay. An ambiguous solution? ABC v St George's Healthcare and the duty to balance the competing interests of patients and their relatives
The Making of Decisions by Patients in Predictive Genetics (2) - Shane Doheny
February 2021, Virtual meeting. Plenary speakers: Dr Shane Doheny & Professor Angus Clarke. The Making of Decisions by Patients in Predictive Genetics
The Making of Decisions by Patients in Predictive Genetics_2_February 2021.pdf (2 MB)
The Making of Decisions by Patients in Predictive Genetics
February 2021, Virtual meeting. Plenary speakers: Dr Shane Doheny & Professor Angus Clarke. The Making of Decisions by Patients in Predictive Genetics
The Making of Decisions by Patients in Predictive Genetics_February 2021.pdf (447 KB)
Identity and Information-learning from Genetics: Looking Beyond Genetics - Emily Postan
November 2020, Virtual meeting. Plenary Speaker: Dr Emily Postan. Identity and information-learning from genetics, looking beyond genetics.
Identity and information-learning from genetics, looking beyond genetics_November 2020.pdf (5 MB)
Consent & Confidentiality in Genomic Medicine - Anneke Lucassen & Alison Hall
July 2019, Wellcome Trust Collection, London. Plenary Session: JCGM Consent & Confidentiality Guidance 2019, led by Anneke Lucassen & Alison Hall
Consent and Confidentiality in Genomic Medicine_July 2019.pdf (711 KB)
The Right Not to Know - Graeme Laurie
October 2016, Birmingham. Plenary Speaker; Graeme Laurie. The right not to know
Good conversations about Risk and Information Sharing - Prof Gwen Adshead
November 2017, Southampton, University of Southampton, Wide Lane Conference Facility. Plenary Speaker: Prof Gwen Adshead. Good conversations about risk and information sharing
Good conversations about risk and information sharing_November 2017.pdf (4 MB)
Recontacting Patients in a Dynamic Healthcare Environment - Susan Kelly
February 2017, London, Academy of Medical Sciences. Plenary Speaker; Susan Kelly and colleagues. Re-contacting in Genetics Practice. Results from a 3 year ESRC research project
Recontacting patients in a dynamic healthcare environment_February 2017.pdf (6 MB)
Making ethical decisions in a legal world - Dr Jose Miola
March 2013, Leicester, Devonshire Place. Plenary Speaker; Dr Jose Miola Senior lecturer, School of Law, Leicester. "Making ethical decisions in a legal world"
Making ethical decisions in a legal world_March 2013.pdf (908 KB)
